Wednesday, 24 September 2014

What do you do all day? (Therapies I have tried)

What did you get up to this week? What do you actually do all day?

I don’t mind being asked these common questions, in fact I quite like it, but it’s how to answer that I find tricky. 

Most weeks I will have a Focus Event, such as going to another part of town for an appointment or to meet a friend, and all other minor activities and resting are planned around that.  So the Focus Event is my answer to the questions ‘I’m going to …. but I’m not doing much else.’ 

The problem is, this isn’t true! I’m doing loads of other things.  Of course there’s a lot of resting but I also spend a huge amount of time actively working on my recovery.  The recovery processes and therapies don’t feature in my answers because I worry that it is mind-numbingly dull, and I definitely don’t want to be someone who only talks about their health.  Equally though, I want people (or possibly I want me) to know that I am giving 100% to my recovery, and I am not sitting around all day waiting to ‘be better.’ And so, I have compiled a list of what I do spend my days doing, the therapies and processes I have tried.   I hope it will help to answer the questions, and also give you some ideas to explore. 

Tuesday, 26 August 2014

Help for Horizontal Days

Whether you do it for 23 hours a day, just half an hour, or most likely somewhere in between, one thing is for sure: if you have Chronic Fatigue, you rest.  

I’ve consulted over 30 practitioners over the last two and a half years, and it’s the only thing they all agree on: if you have Chronic Fatigue, you need to rest. 

Tuesday, 8 July 2014

Wednesday, 2 July 2014

Small Changes for Smoother Sailing

I’m not entirely sure whether it’s due to muscle weakness, shakiness or sheer brain-fog-induced-clumsiness, but one thing is for sure: I am always dropping things! Usually it’s a breakable item, and most often a glass. Not a huge problem in itself, but it contributes to the fear factor nonetheless and so in keeping with my ‘lets make life easier for myself’ motto I’m currently trying to embrace, I purchased 3 unbreakable tumblers. And not just any tumblers, pretty Orla Kiely designed ones!

It’s a new step for me, making a little change or purchase that makes my days easier, but I highly recommend it… and here are some more ideas…

Tuesday, 13 May 2014

Tuesday Tune: A Wonderful World

First released as a single by Louis Armstrong in 1967, What a Wonderful World has had many reincarnations and it is one of my go-to 'Everything is ok' songs.  This version is my new favourite… and it's not even sung!

Thursday, 8 May 2014

Things We Love

At first I was too sick to think about reading.  My day consisted of bed, doctors appointments, brief visits from family and googling symptoms.  Later, when I first tried to read, I looked at a page of the newspaper and saw the words.  Something strange was happening though, they were staying on the page and they weren't going into my head.

Had I forgotten how to read?

Tuesday, 6 May 2014

Tuesday Tunes: Get Happy and Lucky

Here are some cheerful tunes for your Tuesday.  They're both popular (Happy has had 222 million views on YouTube alone) and with good reason… they make you smile!